Tag Archives: vasculitis

Peppermint Tea anyone?

I can’t remember the last time I visited the coffee shop in the ether. The bell tinkles above the door and I am greeted by the smell of freshly baked cakes that bring back happy memories of sitting on the yellow sofa close to the bookshelves at the back, sharing news of my week with you.

The cafe is surprisingly full with familiar faces. It’s good to be back. I make my way to the counter and order a peppermint tea – no cake today as I have a strict diet to adhere to. Searching the crowded space, I spot a seat near my favourite yellow sofa and gently shove my way through, barely making it to the low table and mottled red armchair without spilling. It’s so good to see your friendly face. As we are still under Covid restrictions, I won’t give you a hug. A big smile will have to suffice.

I ask you how you have been and what you have been up to over the past two years. Yes, it feels like a lifetime since we have chatted and so much has happened, I don’t think I will fit in all the news. So I begin with the biggest shocker and leave the trivial bits out for later. Since last year, my kidneys have failed and are working at 3%. Apparently my little organs were attacked by my own antibodies known as Anca Vasculitis. It destroyed the kidneys and the doctors were afraid that if it was still active, it could attack my lungs or my brains next. Over the past few months, I have been receiving chemo treatments to suppress my immune system and hopefully kill the vasculitis. I was going to receive my fifth treatment this week but I’ve caught Covid which has delayed the process. Plus my white cell count is low and other little issues are rearing their ugly heads which makes the doctors think it best not to dampen my immune system further.

As I take a sip of the peppermint tea, I tell you that it is not all doom and gloom. The dialysis is going well and I am still running my writing clubs and literacy booster private lessons. The mentoring has taken off too with more clients signing up for advice and help. It is thrilling to meet them and I appreciate their efforts to become the best version of themselves through the process of writing. My own writing has slowly come back and I am hoping to finish my next crime thriller this year. I missed the opportunity to submit my book to a publisher who was interested because I didn’t finish the script but I guess time and tide will tell whether it was meant to be or not. I am not stressing over it as I know how hard it is to complete a story with the right ending.

My mug is lovely and warm on this chilly Monday morning and I watch as the sun plays hide and seek behind the fast moving clouds outside as I listen to you telling me about your weekend and what you hope to achieve this week. We both can’t believe that January has already passed and we are into the second month of the year. Where did the time go? I think of how different life is now, living with an affliction that has changed my sleeping and eating habits, as well as my family’s. The ‘no salt’ rule in my house has been re-enforced. Unfortunately, rebel forces represented by the Hubble and oldest sprog mean that salt still finds its way into the food if they are in charge of dinner. The rest of us continue to battle to be healthy but it is very difficult when the rebels order salty, battered goods. My weakest point is when they buy Burger King Big Whoppers – my favourite! The struggle continues and though I do relapse into bad eating habits – overall, I think I have improved.

The mickey mouse clock with the moving eyes chimes, announcing the hour. It’s time for me to go. I take in a deep breath, trapping all the smells and tastes of the coffee house . It might be a week or a month till I visit again but when I do, I will be happy to see you here again. So save me a seat and let’s share our news the next time I visit.

Have a great week.